Finally my appointment has come through from Ophthalmology for my slit lamp eye test. This is to see if they can detect Wilson Disease. I guess this is good, but why two months for a simple procedure? The one I am waiting for is the Endoscopy , again it’s a long wait but it’s important that this is done in order to detect any Varices if present.
My biggest challenge at the moment is keeping my mind in order. The last couple of months I’ve somehow shifted from my proactive realist approach to a more laid back attitude. Thankfully my recent visit to the new Cardiff library which lead to me picking up a book by Howard J. Worman M.D. Titled ‘The Liver Disorders and Hepatitis Sourcebook’ has put me back on track. It’s a very comprehensive book covering a huge range of liver related topics. A lot of my questions have been answered but one of the things that stood out was that determining the right time to be referred to a liver transplant unit is not an exact science. In fact, Dr. Worman suggests that you should plan to be referred at least two years in advance of a liver transplant.
So what to do? The first thing is to get referred to a more specialist hospital. I was supposed to do this before but again like always my GP convinced me to stay in Wales. Now he’s actually asking whether I’ve looked at some other clinics. I guess I better get on with it.
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